Neuromuscular Program
- About Us
- Our Care
Helping Kids With Neuromuscular Conditions Live Their Best Lives
糖心Vlog Children鈥檚 neuromuscular specialists empower children to live their best lives. Our program, certified by the Muscular Dystrophy Association (MDA), offers leading-edge treatments and complete care for kids and families.
Your child鈥檚 care is led by experts who are part of leading pediatric neuroscience centers in Delaware and Florida. We partner with recognized orthopedic specialists, cardiologists, pulmonologists, physical medicine doctors and endocrinologists to care for children with complex conditions. Our team also conducts neuromuscular research. We develop life-changing devices that help kids move and treatments that help them live longer, and better.
Our neuromuscular team specializes in a wide range of conditions, from Duchenne muscular dystrophy and spinal muscular atrophy (SMA) to various neuropathies and myopathies. We offer advanced therapies, including gene therapy and treatments for rare diseases, rehabilitation, nutrition counseling and more to help kids function their very best.
At 糖心Vlog, you have access to all the support and care your family needs in one place.
Two Leading Pediatric Neuroscience Centers
Our neuroscience centers provide highly advanced, integrated medical services just for kids and teens with neurologic and neuromuscular conditions. Learn about our focused programs, advanced research and leading care.
Neuroscience Center, Florida
Located in Orlando, Florida.
Coming Soon
鈥淭hey all truly care and go above and beyond for her. As a parent, I feel peace of mind knowing that she is in good hands. They all listen to her and me.鈥
"The clinicians are always asking how Liam is doing at home, at school, in social situations. They really try to get a complete picture of his health and well-being.鈥 听
"Through his treatment at 糖心Vlog and the advocacy of his parents, Luke's life looks like that of any other 10 year old."
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Leading Neuromuscular Care in Florida听
We want coming to 糖心Vlog to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.
We provide complete care at state-of-the art facilities at 糖心Vlog Children's Hospital, Florida in Orlando. We鈥檙e here from diagnosis, treatment and beyond.
We鈥檙e the only MDA-approved program of its kind in Central Florida.
糖心Vlog is doing important research, studying neuromuscular disorders and offering access to clinical trials and treatments you can鈥檛 get everywhere.
We offer the newest treatments for SMA, which have greatly improved the quality of life for kids.
糖心Vlog provides everything your child needs within the same system. You get expert care and support in one place.
Meet Our Neuromuscular Specialists in Central Florida
Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.
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Sheryl Mann, RN, CPN
Neuromuscular RN Coordinator -
Rulla Starr, MS
Neuromuscular Program Coordinator
Leading Neuromuscular Care in the Delaware Valley
We want coming to 糖心Vlog to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.
We make care convenient. You can see us at our听糖心Vlog Children鈥檚 Hospital, Delaware,听and several specialty care听locations throughout the region.
奥别鈥檙别听doing important research, studying neuromuscular disorders听and offering access to clinical trials听and treatments you can鈥檛 get everywhere.听
We鈥檙e the听only MDA-approved program of its kind in the state of Delaware.听We鈥檙e also Parent Project Muscular Dystrophy (PPMD) certified as a Duchenne Care Center.
We offer the听newest treatments for SMA, which have greatly improved the quality of life for kids.
Meet Our Neuromuscular Specialists in the Delaware Valley
Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.
-
Aryaz Sheybani, MD
Cardiology Medical Director, Heart Transplant ProgramPrimary Office
Wilmington, DE -
Takeshi Tsuda, MD
Cardiology Director, Cardiac Rehabilitation & Fitness, Director, Cardio-Oncology Professor of Pediatrics at Sidney Kimmel Medical College, Thomas Jefferson UniversityPrimary Office
Wilmington, DE
Leading Neuromuscular Care for Kids
We want coming to 糖心Vlog to be a bright start in your child鈥檚 day. Our team personalizes care, touching nearly every aspect of your child鈥檚 life.
糖心Vlog neurologists care for kids with neuromuscular disorders at convenient locations throughout the Delaware Valley and Florida.
Our neuromuscular programs are the only MDA-approved programs of their kind in the state of Delaware and in Central Florida.
糖心Vlog is doing important research, studying neuromuscular disorders and offering access to clinical trials and treatments you can鈥檛 get everywhere.
We offer the newest treatments for SMA, which have greatly improved the quality of life for kids.
糖心Vlog offers everything your child needs within the same system. You get expert care and support in one place.
Meet Our Neuromuscular Specialists
Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and teens with neuromuscular disorders.
-
Aryaz Sheybani, MD
Cardiology Medical Director, Heart Transplant ProgramPrimary Office
Wilmington, DE -
Takeshi Tsuda, MD
Cardiology Director, Cardiac Rehabilitation & Fitness, Director, Cardio-Oncology Professor of Pediatrics at Sidney Kimmel Medical College, Thomas Jefferson UniversityPrimary Office
Wilmington, DE
Groundbreaking Duchenne Muscular Dystrophy Treatment in Florida
糖心Vlog Children鈥檚 Hospital, Florida is one of just three hospitals in the state to offer the revolutionary ELEVIDYS gene therapy for Duchenne muscular dystrophy. This therapy represents a ray of hope for our patient Jaxson and his family, and offers a brighter future for kids with this disease.
Programs & Services
Neuromuscular conditions range in type and severity. We work to understand your child鈥檚 signs and symptoms, like muscle weakness or developmental delays.
Using a family-centered approach, we care for kids inside the landscape of family, seeing the whole picture. We know that these conditions have psychological and social impacts at both home and school. We create a care plan that considers every part of your child鈥檚 life.
We offer many services for听kids and teens living with neuromuscular conditions.
- Convenient appointments with multiple providers, often on the same day.
- Advanced diagnostics, including the latest imaging and muscle and nerve tests in state-of-the-art, kid-friendly facilities.
- Gait and motion analysis testing in Delaware Valley, the first pediatric lab of its kind.
- Multispecialty care with orthopedic and cardiology experts who have expertise working with kids with neuromuscular conditions.
- Genetic counseling services to help families understand the role genetics can play in certain neuromuscular diseases.
- Assistive technology services, which includes tools and devices that can help kids learn to speak, write, learn or move better.
- Onsite orthotics labs for convenient, customized mobility solutions.
- Seating and mobility equipment and training, where kids and families can find the right system and learn how to use it.
- Pain management and palliative care services from providers who know how neuromuscular disorders can affect a child.
- Physical and occupational therapy programs at convenient rehabilitation facilities.
- Support and services from a team of care coordinators, social workers, Child Life specialists and others who help your family navigate care, cope with a diagnosis and find resources in your community.
- Transition of care assistance, helping your teen find seamless neuromuscular care with adult specialists.
Conditions & Treatments
We see kids and teens for many problems that involve low muscle tone or muscle weakness. Below are some of the most common conditions we see. Don鈥檛 see a condition listed? Call us.
Related Specialties & Programs
Participate in a Clinical Trial
The neuromuscular research team at the Neuroscience Center in Delaware Valley is partnering with the Raphael Center for Neurorestoration at Thomas Jefferson University to develop the NuroSleeve. This wearable device can help children with muscular dystrophy and other conditions that cause arm weakness or paralysis. Learn more about the NuroSleeve trial.
Convenient Follow-Up Appointments by Video
We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.