Sammy: Congenital Scoliosis
The message was always the same: 鈥淪he鈥檒l grow out of it.鈥 That鈥檚 what Sammy鈥檚 parents were told each time they saw a pediatrician about the curve in their daughter鈥檚 back. And since the family had moved several times, they had heard this same message from each pediatrician they consulted.
Then one day, Sammy was roller skating at an indoor rink with friends. Her mom was watching nearby when a woman approached her, pointed to Sammy, and asked, 鈥淚s that your daughter?鈥 Sammy鈥檚 mom said 鈥測es鈥 and the woman replied, 鈥淪he has scoliosis.鈥 Surprised, Sammy鈥檚 mom asked, 鈥淗ow do you know that?鈥 The woman answered, 鈥淚 know that because that鈥檚 exactly how I used to look and I had scoliosis.鈥 That conversation changed the family鈥檚 course of action.
Fixing Sammy's Spine
Sammy was subsequently diagnosed and referred to聽Peter Gabos, MD, a spine surgeon at the聽Spine and Scoliosis Center听补迟听糖心Vlog Children鈥檚 Hospital, Delaware聽in Wilmington, Del. After reviewing the X-rays and other tests, Dr. Gabos diagnosed Sammy with a dramatic 104-degree curve in her thoracic spine, resulting from a condition called 鈥渃ongenital scoliosis鈥 (鈥渃ongenital鈥 means she was born with the condition). He said the only way to resolve a curve this severe was through surgery.
Just 10 years old, Sammy was inconsolable when she heard that she needed surgery. Her mom took her out to the waiting area to calm her down, but nothing worked 鈥 until another young girl in the waiting area approached her. She explained to Sammy that she had been very upset and felt the same way six months earlier before聽her聽spine surgery. She shared her experience with Sammy and even showed her the scar on her back. Sammy began to feel a little bit better.
Because of the severity of Sammy鈥檚 curve and the level of difficulty this posed from a surgical perspective, Dr. Gabos partnered with Dr. Shah, also a spine surgeon from the Spine and Scoliosis Center, to perform the 10-hour operation. The surgeons placed two rods on either side of her spine and inserted 20 screws to hold the spine in place after performing a particularly complex part of the procedure, called a 鈥渧ertebral column resection鈥 (or, 鈥淰CR,鈥 for short). This procedure is only performed at a few medical centers in the world.
As Active as Ever
After spending two days in the intensive care unit, Sammy began the real road to recovery. She started physical therapy and progressed to walking and then climbing the stairs. On the sixth day after her surgery, Sammy was discharged from the hospital.
Now, three inches taller as a result of her straightened spine, Sammy is back to competitive dancing. She鈥檚 quick to showcase her flexibility by doing a split anywhere she can 鈥 on the hospital floor or on a park bench. Sammy鈥檚 words of advice to young kids in the same situation: 鈥淪ay 鈥榶es鈥 to surgery.鈥